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PaperclipPerfector  5mo ago (text post)   26064 thread views

Culture War Roundup for the week of August 4, 2025

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As you say, you came along long after all this row. So any improvements that occurred before you started working in the UK are invisible to you. I don't know if the lurid accusations were true but they were certainly made:

Of the hundreds of families who submitted testimony of their loved ones’ experiences on the pathway to the independent review chaired by Baroness Neuberger in 2013, many referenced hydration and nutrition. Some patients’ families had been shouted at by nurses when trying to give them water. The panel also heard how opiates and tranquillisers were sometimes used inappropriately and in too strong a dose as soon as the LCP was initiated, which made the patient drowsy and incapable of asking for food or drink. The Neuberger report quotes a particularly shocking example of someone who suffered a painfully “slow death, attributable in part to dehydration and starvation”.

...One case study in the 2023 report refers to a 21-year-old woman named Laura Jane Booth, who was admitted for a routine eye operation in 2016. Three weeks later, she was dead. Booth, who had the genetic disorder Patau’s syndrome, was initially deemed to have died of natural causes on her death certificate; a 2021 inquest, however, found that there had been a “gross failure of her care” and that “malnutrition contributed to her death”. Her parents said that she’d been denied food for weeks while in hospital, and that they’d had no idea she was put on an end-of-life pathway. The report for LCFCPG said this is one of seven cases in which doctors failed to take a patient’s mental capacity into account, in clear breach of the Mental Capacity Act 2005.

...We spoke with Julie James, whose dad David was a respected Liverpool musician and cancer survivor. James drove himself into Aintree Hospital in May 2012 with constipation. After originally being told a simple procedure would remove the blockage, he contracted pneumonia and sepsis and became more seriously ill, eventually requiring a tracheostomy and ending up on a critical care unit. At first, he did not recognise his family.

“He was crying out for a drink,” Julie says. “He was very, very thirsty.” Julie says David’s wife, May, asked if she could give him some water, and was told by a nurse that David was not allowed food or drink. When David was finally given fluids by drip, he began to recognise Julie and May again, and even asked for music books to pass the time.

Julie and her family accused the hospital of putting her father on the LCP without his or his family’s consent, so he could pass away “peacefully” and “with dignity”, as she remembers hospital staff saying at the time. The trust took the unusual step of seeking declarations from the Court of Protection to withdraw what they said were “aggressive” treatments, including CPR; they argued that James had little chance of recovering and that trying to resuscitate him would cause him pain. The judge denied the trust’s application, but this began a long legal journey for the James family that led to a Supreme Court battle via the Court of Appeal after James’s death from cardiac arrest.

That is part of the problem: something is done to excess, it gets fixed, the people who come along later have no idea of the history and go "well everything is fine as it stands today, what is the problem?"

The problem is, we've seen the days when it wasn't okay, and there's little reason to think that there will not be new and improved ways of going off the rails in future.

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