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Culture War Roundup for the week of March 11, 2024

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A follow-up to the Irish referenda. Both @Follamh3 and myself posted on this a few days back, and here's one reason why the Plain People Of Ireland voted (those who did turn out to vote) 70% "No" to both - nobody trusts the government because the reality on the ground is this.

Sam Lewis turned 13 years old last week. He is autistic, is non-verbal and goes to a primary school that is outside his catchment area.

Now in sixth class, Sam's parents, Greg and Celine, have been looking for a secondary school place for their son since last October.

Separate 200-page reports, which include files from Sam's psychologist, occupational therapist, speech and language therapist, along with other documents were delivered by Sam's father to nine schools.

Greg received a no from each school, some of which were inside and outside the Dublin 11 catchment area of the Lewis family home.

Sam is in a difficult situation by virtue of his intellectual disability and his autism.

On one hand he could attend a special school. However, he could also function in an autism class within a mainstream school.

The problem in relation to special schools is that they are full.

It is understood that younger children with more complex needs are being prioritised because they cannot function in mainstream schools, which means children like Sam are left in limbo.

While Sam has done well in a mainstream environment in primary school, he is now in a position where he cannot get an autism class place in a mainstream secondary school or an enrolment into a special school.

It has left Greg and Celine in a situation where one of them will have to give up work to remain at home full-time with their son.

"We can't ring up the bank and go, one of us have had to give up work because they have to earn. They have to get their money, you know?" Greg said.

They are not alone.

In Dublin 15, which is adjacent to Dublin 11, it has been an issue for ten years according to Síle Parsons, spokesperson for Autism School Dublin 15.

A survey of primary school principals in the area showed cracks in the system last year.

It warned of a shortfall of six places in second-level autism classes for 2024/2025.

Eight children are now without a school placement this September, in a constituency with two ministers and a Taoiseach, according to Ms Parsons.

Article 24 of the United Nations Convention on the Rights of Persons with Disabilities places obligations on the Government to ensure that people with disabilities are not excluded from education on the basis of disability and can access education on an equal basis with others.

The national association for people with an intellectual disability, Inclusion Ireland, believes the situation regarding school places for autistic children and those with intellectual disabilities has improved in recent years.

However, CEO Derval McDonagh said that there are still significant issues in children transitioning from primary to second-level in pockets across the country.

"What we're hearing frequently is that children are applying to up to 20 to 30 schools. And unfortunately, they're only hearing at the last minute about whether they've been given access to a school place.

"So that obviously leads to unsatisfactory situations, such as a lack of careful transition planning, a lack of support for children going into that into that school place. We really need to be moving way beyond the conversation about school places. That's a very low bar that we've set," Ms McDonagh said.

While there have been improvements in the planning process in recent years according to Ms McDonagh, the problem is that it is going to take "a long time to get to where we need to get to".

"Unfortunately, while other children across the country get notification in October or November disabled children are only hearing in May, June, July, August.

"So this leaves no time for transition. It leaves families and children in stressful situations where they don't know yet where their child is going to access their right to education," she said.

The Department of Education has said that in 2023, it spent over €2.6 billion on special education and further progress would be made this year as an additional €113 million will be dedicated to providing supports for children with special educational needs.

So, is the issue a matter of funding or planning?

Ms McDonagh believes planning is one of the most significant issues because of a backlog of needs that have been identified but haven't been addressed.

That includes resource issues such as additional teaching staff.

"We're talking about special needs assistance, but we're also talking about resources in a broader context, which is about training, education, support for schools in that way too.

"We've a road to go there. To have rights based supports for children and school, we need to have access to therapies. We need access to training, so all of those supports must be built into our local schools, and we're not there yet," she added.

A spokesperson for the Department of Education said that "enabling children" with special educational needs to receive an education is "a priority" for the Government.

"The vast majority of children with special educational needs are supported to attend mainstream classes with their peers. Where children with more complex needs require additional supports, special classes and special school places are provided."

It said the department has been engaging "intensely with the National Council for Special Education (NCSE) in relation to the forward planning of new special classes and additional special school places".

"This forward planning work is well under way ahead of the 2024/25 school year. This work involves a detailed review of statistical data in relation to forecasting demand for special class places, an analysis of available school accommodation, consideration of improved data sharing arrangements and a particular focus on the provision of special classes at post-primary level."

The department has said that along with the two new special schools opening this school year, 390 new special classes - 254 at primary and 136 at post-primary level - have been sanctioned by the NCSE for opening this school year.

It has said that schools and parents will be notified over the coming weeks where new special classes will be sanctioned for the 2024/25 school year.

The question is why parents have not been assured that those notifications are coming and can those who are worried about not getting places set aside the potential of re-mortgaging their homes.

The department has said it, and the NCSE are committed to ensuring that sufficient special education placements will be available for children for this school year and future years.

However, the Lewis's are worn out.

"Our special needs kids are just treated like fourth-class citizens in their own country," according to Greg.

"Every time you've reached the hurdle, there's a brick wall in the way and to get that brick wall down, you have to fight, fight, fight all the time. Nothing comes easy when you've got kids with special needs."

The usual suspects try to pin the blame on anti-immigrant sentiment, the far-right, volatility, and just the yokels are too ignorant to know what's good for them. But the reality is, people see the disconnect between the fancy language about gender-neutral and inclusive, and what actually happens when support for carers and those in need of care is sought: you're not getting it, you're not going to get it. We think you're so special, we're going to have a referendum to put it in the Constitution! Also we can't even tell you if your kid will have a school place for the new term. Can you see why voters with that knowledge might just possibly vote "No" and still not be far-right gender-essentialist white supremacists?

Bad old sexist, misogynist, gendered language that asks the State to make sure that there won't be the necessity for choices such as the Lewis family say above about "It has left Greg and Celine in a situation where one of them will have to give up work to remain at home full-time with their son".

Article 41.2.1° “In particular, the State recognises that by her life within the home, woman gives to the State a support without which the common good cannot be achieved.”

Article 41.2.2° “The State shall, therefore, endeavour to ensure that mothers shall not be obliged by economic necessity to engage in labour to the neglect of their duties in the home.”

Shiny progressive new inclusive, non-gendered, non-marriage based language rejected by the backwards public:

The State recognises that the provision of care, by members of a family to one another by reason of the bonds that exist among them, gives to Society a support without which the common good cannot be achieved, and shall strive to support such provision.

I mean, c'mon! The Department of Education has been "engaging intensely with the National Council for Special Education (NCSE) in relation to the forward planning of new special classes and additional special school places". That's "striving", isn't it? Nobody said anything about actually paying out money so mothers (or fathers or non-binary babas) wouldn't have to engage in labour outside the home and wouldn't be at a loss by this, unlike the bad old 1937 Catholic bigots!

Everything else aside, it boggles the mind that it is considered appropriate for a non-verbal student to be mainstreamed.

There is the trend now to put kids in mainstream education if they are capable. If he's otherwise smart, he may be able to learn in mainstream setting with support. If he can't get a place in a special school and there's a mainstream place available, then it's wasting time to have him sitting at home doing nothing. The problem seems to be all the special schools are full and the mainstream schools can't accommodate his needs.

Non-verbal may be more akin to being spastic than to being intellectually disabled. The idea is to encourage and enable, by mingling with ordinary children, children with additional needs to achieve what they can, rather than using special schools as a dumping-ground. Some kids are going to be so severely impaired that mainstreaming is impossible, but for others, with adequate supports, they can get on.

In the past I've worked in vocational rehabilitation for developmentally disabled young adults, usually medium-functioning autistic young men. They came from a range of backgrounds, some of them being quite poor others firmly middle class. We provided an opportunity for them to do real work with non-disabled cooworkers but in a setting with professional support staff available for them when needed. There was an obvious gap in ability and self confidence between those who had been mainstreamed and those who had gone to "special schools as a dumping-ground". Their disability levels were otherwise very similar but those who had been largely schooled and housed together with the profoundly disabled were much harder to rehabilitate. Another interesting observation from that job: while most of our clients were between 18-25, their parents were still quite involved in their lives. Many of them had received extensive coaching by their parents to play-up or play-down their disability based on the audience. Around authority figures, anyone w' the gov't or in a medical setting they acted more disabled, when around family or especially their mother's friends it was the exact opposite. This was a problem as they tended to slot us into the "authority figure" role and calibrate their behavior accordingly which was very unhelpful in a vocational setting where we were trying to teach them skills and asses their competency levels.

Many of them had received extensive coaching by their parents to play-up or play-down their disability based on the audience. Around authority figures, anyone w' the gov't or in a medical setting they acted more disabled

Yeah, that's part of the problem I've mentioned before about gaming the system. Some do it in good faith as the only way they've found to get anyone to pay attention to the problem - if the kid is deemed capable, then any supports stop there even if needed. So the parents are nearly forced into exaggerating the problem in order to get anything done.

Some people do it deliberately and will coach/bully the kids into acting 'more disabled' so that the parent(s) can get more goodies (not that there are a lot of goodies going); for instance, from my social housing days, I heard the story of one parent who wanted a new house because her child was a wheelchair user and she claimed the doorways in her current house were too small for the wheelchair to pass through.

The problem there was that (1) the guys who went out and measured the doorways were sure they were plenty big enough and (2) even though the child legitimately had a prosthetic limb, she was mobile and not wheelchair dependent. In fact, the same parent who said her kid needed a wheelchair to get around the house, hence why Mommy wanted one of the nice newly-built social houses to move into from the older council house she was living in, used to send her kid to pay the weekly rent and said kid walked all the way to the council offices from where they lived and back home.

This was a problem as they tended to slot us into the "authority figure" role and calibrate their behavior accordingly which was very unhelpful in a vocational setting where we were trying to teach them skills and asses their competency levels.

Preach, brother, preach! 😁