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It's Autism
I've written here before about my daughter who been a challenge to raise.
Since my last comments, I had connected with a Psychiatrist who did some blood work and recommended we give A some supplements. Vitamin D, P5P, L-Methionine. We've been at it for almost two months now and I think there has been some change in a positive direction. I've been trying to keep a record going of the behaviors that are most odd to us:
Here is the when we first started the supplements:
And here is where I would put her today:
We have some days where aggressiveness trends back up to a 4 or 5, but the trigger is often she does something rude, doesn't realize it's rude, gets mad at a sibling for saying she did something rude, and then lashes out. And this is more of a weekly occurrence than a daily occurrence. It feels like progress to me.
Well, we had a 1 year follow up with the Neuropsychologist who diagnosed her with ADHD, we told her about how we pulled A from school due to disruptive behaviors that kept her in the school office for hours every day, we emphasized how weird A's understanding of jokes and speech can be, and she agreed to test her for Autism.
She had a couple days of testing. Her ADHD symptoms have improved somewhat since last year. Her verbal IQ increased about 15 points to a normal range now. There's a test where the kid has to avoid kicking a soccerball before a signal is given and she did better than the average kid, instead of worse like you'd expect from ADHD. However, not knowing if she was giving the correct answer or behaving the correct way was driving A up a wall and she threw a fit at some point, so not every test was completed.
A week later, Dr. [redacted] gave us the results. Our daughter has learned human behavior like a Miss. Manners textbook but has definite signs of Autism on display during an ADOS-2 test. Repeating words and phrases over and over again for minutes, bumping her hands together to expel nervous energy, talking super fast then slow, not really conversing with Dr. [redacted] but rather having a one-sided conversation. Couldn't describe what made a friend different from someone else, what the experience of having an emotion is like, etc.
So now she needs to up her speech therapy to 1 hour a week, get some kind of occupational therapy, and maybe join some sort of support group with similar people.
Meanwhile I feel like I've been gaslit for the last five years.
She was evaluated for Autism when she was 2 and couldn't talk. They said there weren't any signs. Last year, with this same Neuropsychologist, they didn't give her the ADOS-2 test but gave her some other kind of test and said she didn't show signs of Autism. For the last year I've been going crazy, reading books on BPD in children (doesn't seem to exist but people will certainly sell you books on it), books on ADHD, dyslexia, nutrient deficiencies, ODD, etc. We've tried high carb low fat diets, elimination diets, supplements, you name it. And all along it was Autism, which honestly I suspected since she was 7 months old and made her first pile. (The second she learned to crawl, she gathered all her toys into one place and lay on them like a dragon guarding a hoard. The second she learned to walk, she started eloping at parks like being able to find and return to her mother wasn't a consideration for her.)
Meanwhile, now that I'm putting "Autism" in the search bar, it turns out there's all kinds of official sounding terminology for all the weird behavior she's been doing. It even explains her writing numbers and letters backwards. But before this week I ignored results with Autism, because I'd been told on two separate occasions that she doesn't have it.
It feels like the weight of the world has been lifted from me. The responsibility of being the parent of a weird kid has been lifted from me. There's a name. It's not my parenting style. It's not my fault.
The biggest head trip is how similar she is to me, if I wasn't a genius. I didn't get frustrated in school, reading came easy to me, I learned figures of speech like I learned the months of the year. But the social stuff, and repeating my own words, and the one-sidedness to my speech. That is a lot like me. A lot of things my daughter did, my mom would say, "That's just what kids are like," and "I think the school is being ridiculous, sending her to the office so much," when it was for things like chasing a teacher around the classroom. Maybe that's just what her kids are like (except I was better behaved at school, partly because I was in gifted classes, partly because I finished everything ahead of time and was allowed to read books most of class).
But I also feel lost in the woods without a map. I have to sign her up for therapies. Where do I start? I don't know. We're going to see if this diagnosis means the school can take her back. But we're also concerned about what that would look like. It's all a lot.
I've also started having dizzy spells since hearing the results. Don't know if that's related but it started a couple hours after the appointment. So that's weird. Overwhelming stress transferring from one bucket to another in an inefficient fashion.
I hope that having a label helps things to improve, and that things do continue to improve. That's interesting about the supplements helping.
I have three children, and my older daughter (Z, 6) is spectrum-y. It doesn't currently seem to matter all that much -- she's extremely verbal and likes stereotypical girl things, so doesn't stand out all that much. There was a highly verbal child in the intensive autism program I sometimes teach, and I though "wow, he sounds exactly like Z!" It's hard for me to pinpoint exactly why. It's also hard to describe why without myself sounding like a bad mother, and using term like "blathering." I thought that maybe kids are just like that, but my other kids are not like that.
I teach art professionally, so I thought that maybe I would teach her art. Mostly she wants me to give her a piece of paper and a pen, and then cuts it up into hundreds of tiny shapes, and draws things for her dolls on them, and leaves piles of tiny bits of paper all over the place, over and over again. Sometimes I try to teach her something specific, and she just kind of turns away and goes to work on the snipping and drawing, in a way that feels more like how I experience teaching the autism groups. If I give her a little handmade blank booklet, she'll replicate a Disney storybook, then another, then another, until I refuse to give any more paper. Sometimes she does things at school like hiding under a table rather than putting on her coat, or refusing to leave with us because the teacher is otherwise occupied and unable to dismiss her officially.
When Z was a baby, she had a terrible time with bottles, and my husband had to drive her to my job on my lunch break to breastfeed her in the car. She screamed and screamed, and had a terrible time learning to sleep. I wondered how the human race had managed to endure up to the present day. If she woke up, she would be up for two hours, and shriek at top volume if put back to bed.
Z likes to run in circles around the center of the house for over half an hour at a time, up to hours sometimes, especially when she was younger.
My other children are not like this. My second child is getting near four and can't talk properly, but is very socially warm.
I dunno, children are confusing.
Oh, yeah. A does this. And when she does art, unless she's told to do something specific for an assignment, she will draw a heart with the word "Love" on it every time. Thousands of hearts with "Love" on them and I try to treat each one as special as the first. Thousands of hearts on shreds of paper no larger than an inch across. Scattered around her bedroom.
I think there are probably lots of kids who are "on the specturm" in a sense. But they don't necessarily need to be diagnosed, treated, etc unless it's hampering their life in some way. With A, she wasn't learning in school because she was spending about 20% of instructional time in the school office freaking out. She's someone who needed a diagnosis, support, etc.
I see a lot of A's traits in myself, but I got through school ok because it was easy for me. I didn't make friends though. I could see a case for young-me getting diagnosed and in some kind of therapy to learn how to form human friendships. But I personally was fine without friends? I felt weird and different, which aren't great feelings to have as a kid. But I don't think I honestly craved friendship the way most kids do.
It's only really a disorder if it's hampering your ability to live a normal life. Given Z's age, it's really up to you to decide if Z is happy or if Z needs help and to pursue a diagnosis.
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